June 22, 2026
Source: Human Services Research Institute (HSRI).
The Human Services Research Institute (HSRI) and the National Association of State Directors of Developmental Disabilities Services (NASDDDS) are excited to announce the release of the 2024-25 NCI-IDD In-Person Survey National Report. In 2024-25, we collected data from over 30,000 adults with intellectual and developmental disabilities (IDD) receiving state funded developmental disability (DD) services across 38 states and the District of Columbia.
For nearly 30 years, National Core Indicators (NCI) has worked in partnership with states to collect data on the experiences of DD service users; through this effort, NCI-IDD has become the most comprehensive and generalizable source of information about the characteristics and quality of life of people with IDD using state funded services. People come from diverse backgrounds in terms of race and ethnicity, age, communication preferences, type of residence, urbanicity, and more (see the demographics chapter for details).
Key takeaways from the In-Person Survey (IPS):
- Employment: Across the sample, 17% of people have a paid job in the community. Of those who are not in paid community jobs, nearly half (45%) want a paid community job. There are substantial differences in employment outcomes across residence type.
- Community inclusion and belonging: 71% of people said they get to go out and do things they like to do in the community as much as they want, and 29% take part in groups, organizations, or communities. These data are very similar to previous survey cycles.
- Choice and Decision-making: 23% of people indicated they chose where they live and another 34% had input. Choosing staff continues to be a less common outcome with just 19% of people indicating they chose their staff.
- Relationships: Across the sample, 13% of respondents say they often feel lonely, and 57% say they want help with to make or keep in contact with friends. Altogether, 36% of people want to be part of more groups in the community.
- Self-direction: 19% of people report using a self-directed supports option. Among those, 16% of people say they mostly make the decisions about services that are self-directed.
- Workforce: 40% of people say their staff change or turnover too often.
- Health: 27% of people went to the emergency room in the last year. Overall, 39% of people take at least one medication for mood, anxiety, and/or psychotic disorders.
To see more data, check out the 2024-25 IPS Data At-A-Glance.
Differences in outcomes among states point to possible quality improvement and policy considerations.
Within the sample, we see noticeable differences between states in outcomes, as well as within states across different settings and groups. HSRI and NASDDDS will continue to work closely with state partners to identify opportunities to use these findings to develop data-driven recommendations to strengthen Medicaid-funded services for all users.
We know there are lots of people who might be able to use these data to help improve services. We would be most appreciative if you can share this announcement through any relevant newsletters and list-servs. And, if you aren’t already subscribed, sign up for our quarterly newsletter here!
Contact us directly if you are a researcher who would like deidentified data.
NCI makes deidentified data available to other researchers for a small fee. Complete this contact form to learn more about our data sharing policies. Do you have other questions about National Core Indicators? Be sure to check out our Frequently Asked Questions.
News Source: idd.nationalcoreindicators.org/in-person-individual
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