August 1, 2024
Source: Human Services Research Institute (HSRI).
The National Core Indictors – Intellectual and Developmental Disability In-Person Survey (NCI-IDD IPS) National Report 2022-23 is here! The NCI-IDD IPS is the largest and most representative data on the characteristics and outcomes of people with [Intellectual and Developmental Disabilities or] IDD who use state-funded services.
Data from more than 25,000 participants from 33 states
In 2022-23, more than 25,000 people with IDD from 33 states participated in the survey. People come from diverse backgrounds in terms of race and ethnicity, age, communication preferences, type of residence, urbanicity, and more. Each year, we ask people about access to and participation in their community, choice and control, relationships, and more.
Key takeaways from survey data
Check out our At-A-Glance for some key findings from 2022-23 data, and see below for some main takeaways:
- Employment: Across the sample, 17% of people were in paid community jobs, and 44% of those who were unemployed want a paid community job.
- Community inclusion and belonging: 71% of people said they get to go out and do things they like to do in the community as much as they want
- Choice and Decision-making: 24% of people indicated they chose where they live and 31% indicated they had some input in choosing where they live
- Relationships: Across the sample, 68% of people say they have friends and can meet with their friends in person when they want
- Self-direction: 17% of people report using a self-directed supports option. Among those, 15% of people say they mostly make the decisions about services that are self-directed and 40% say they have input and family/friends help with decisions
- Workforce: 40% of people say their staff change or turnover too often
- Access: 80% of people say they have a way to get places when they want to do something outside of the home (like going to see friends)
- Health: 76% of people had a routine dental visit in the last year
Differences in outcomes among states point to possible quality improvement in federal policy
Within the sample, we often observe noticeable differences between states in outcomes, as well as within states across different residential settings. While findings indicate areas in which outcomes for people with IDD are relatively promising, such as relationships, service coordination, and workforce, there are other areas that have more mixed results, especially choice and decision-making, community inclusion, and health. Many of these areas also have strong connections to federal policy such as the HCBS Settings Final Rule and Access Rule, and represent areas for possible quality improvement.
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NCI makes deidentified data available to other researchers for a small fee. Complete this contact form to learn more about our data sharing policies. Do you have other questions about National Core Indicators? Be sure to check out our Frequently Asked Questions.
News source: hsri.org
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